We had an appointment this morning at our beloved Erie Shriner's Hospital for Children, which is in danger of closing forever.
If you remember we were seen in the Emergency Room because Reagan had a neck spasm.
They wanted me to follow up at Shriner's for assurance that all is well.....
They found bony growths on C1 and C2, which is the very start of the spine, and closest to the brain stem. It's causing Reagan's stiffness and discomfort, and even the spasms. The one growth is very obvious, and it's the one in the worst position.
The doctor at the hospital basically told me that he's at a loss as to how to proceed. Surgery is risky, but so is leaving it alone.
He's taking Reagan's films to a neurosurgeon in Philadelphia. I guess he's "the best of the best" and will advise our doctor on how to best proceed. More than likely we will need to find and consult with a neurosurgeon of our own.
Prayers would be most appreciated. I am very stressed out right now between doctor appointments and therapy 4 times a week. Thanks for your continued support! Thanks for reading.
Saving Shriners - ErieTube Audio track - Erie, PA's Video Web site
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